Moebius maʻi pale: Hawaii photo, symptoms,ʻike, lapaʻau

He paʻakikī e noonoo ai i na i kekahi kanaka i hiki ke akaaka, kahea aku a me ka hoike i kekahi Emotions. Eia naʻe, loaʻa nō i na kanaka, a me ka mea, i ka weliweliʻike, - Moebius maʻi pale. Photos o ka poʻe ma mua kilohi e he loa maʻamau, akā, ola kamailio hoʻomaopopo i kā lākou mau maka loa immobilized.

He He congenital anomaly e hoʻomōhala ana i ma luna o ke kumu nui no ke kūpono 'ole o ka cranial nā aʻalolo. Lehalehu t lōlō - kekahi o ka poʻe hewa nui au i nāʻino o ke kanaka kino. Ua Ua wehewehe aku ma ka nele o ka lehalehu t, ka 'aoʻao, ka helehelena manao ia e paʻahau, a me ke ea paha.

mōʻaukala 'ike

No ka mea manawa mua loa ma ka lapaau maʻi pale i ho'ākāka 'ia i loko o 1892 ma Kelemānia neurologist a me ka psychiatrist Paul Moebius. Kēia anomaly He loa pohihihi keia, he i kā mākou o 10-20 no 1 miliona hanau.

German kauka Paul Iulio Moebius i hānauʻia ma ka makahiki 1853 ma Germany, a noho iho la ilaila a pau kona ola. Ua aʻo epekema i ka lapaʻau 'ana o ka holumua ai lōlō, ko mākou hopohopo a me ka noʻonoʻo' kāna hana i loko o thyrotoxicosis. Description i oftalmoplegicheskoy migraine, e kahea ana ia i ka maʻi Mobius.

Manao 'ehaʻeha ka o

Ka loa hanahana loa ano o ka maʻi ua manaoia e ia i ka Moebius maʻi pale, ke kumu o ka a, a hiki i ka hopena o ka lapaau mea nō IKE OLE IA. E like me ka noiʻi a me ka poe akamai i ua maheleia ae la.

• Ka mua manaoio i ke kumu o ka hewa kūpono 'ana o ka cranial nā aʻalolo.
• Ka hope manaʻo i kēia detrimental kanawai o ka luku keʻano o ka hanaʻana, ulu like me ka hopena o ka o oxygen pololi o ke keiki i loko o ka opu.
• Ekolu like me ka kumu nui no ka ho okumu o ka maʻi hoike he'āno'ē kūpono 'ana o ka lehalehu t Hawaii waena.

Moebius maʻi pale - ka maʻi Ua elemakule a me ka loa pohihihi. He He congenital abnormality o ka lehalehu t nāʻiʻo, no ka mea, o ka mea i pono ma kahi'ē lehalehu t, ka 'aoʻao. Ke lōlō hiki e single- a papalua-kapakahi. Man 'Aʻole i pane koke i ka mawaho stimuli,ʻaʻohe ka minoʻaka,ʻaʻohe frowns, pono devoid o loka.

Ma na keiki, poorly ulu keiki omowaiu reflex, ka mea hiki ole ke ale wale iho i ko lakou mau ai a me ka wai no ka mea, o ka mea hoʻonāwaliwaliʻia hana o ka 'ōlelo. Pinepine i ka maʻi i loko o ia lŘlŘ ohana.

symptoms

Moebius maʻi pale - he congenital neurological kāna hana mea he pohihihi keia. People me keia pathology nele i ka hiki i ka hoʻoneʻe i nā nāʻiʻo o ka maka, i nā maka, mai kēlā me kēiaʻaoʻao. Kēia maʻi hiki aku ai i ka nui aʻe 'ana o ka musculoskeletal'ōnaehana a me ka deformation o na wawae.

I ka papa kuhikuhiE lapaʻau hoike ana mai o ka maʻi pale - he kapu o ka hoʻoneʻe, akā, ma laila nō kekahi, haʻi, e hookupaa aku ana i keia mea Moebius maʻi pale symptoms:

• anatomical abnormalities;
• ino mau wawae;
• pilikia i ka moni 'ia a me ka keikihipa omo;
• sensory kāna hana o ka pokole;
• hoʻonāwaliwali i ana i ka mana o ka 'ōlelo;
• hoʻopōʻino hihio.

No hoi, aia no he 'aʻe' ana o ka vestibular excitability a me ka nele o ka waimaka secretion. Skin maʻi kanaka ma luna o ka maka māloʻeloʻe, wrinkle-noa, a hiki i ka wa aʻakaʻaka paha e hea ana. Me ka mahalo i ka subcutaneous'aʻaʻa iaʻoniʻole, i nā kihi o ka waha i mau hōʻike pū 'ana.

Kinaʻaoʻao ua pu ma ka abnormality e like me syndactyly, clubfoot, brachydactyly a me nā manamanalima. I ka hapa lōlō o ke kaʻina komo aiʻano nui nāʻiʻo o ka luna o ka maka kapa no ka mea,ʻaʻohe droop like ma ka lilo ana maʻi.

pathology lapaʻau '

Muli o kona kulana pohihihi anomaly e like me Moebius maʻi pale. ʻike, nolaila, o ka oi aku i na keiki opiopio, Ua paʻakikī a me ka pinepine hiki aku ai i ka misdiagnosis, oi pilikia loa, a koiʻoki lāʻau lapaʻau lapaʻau, e like me:

• cerebral lolo ;
• makapo;
• pepeiao kuli.

Keia hookolokolo ana a me ka hoi hana e lawe mai i loko o kēia ao.

Hoikehonua, lapaau nō hiki ole loa nana i ke kumu o keia maʻi, no laila, ke hoola ia ia loa, hoi, 'aʻole hiki. E mālama nei i ka noiʻi a me ka haʻawina o ka aaiaoe mea i loko o nā chromosomes o nā mea maʻi me ka pae ma ka huli o ka halepaahao mutations.

I kēia lā, ua hoonoho lakou ia lakou iho kauka i ka hana o kōkua nā mākua o nā keiki e loaa ana mai o keia maʻi pale, ma o ka hoomau o ka maʻamau ola ma na kahua o ke ola. He mea hiki iloko o ka olelo hooponopono, strabismus, gait.

'Eleuʻike, he mea nui ole wale no ka ka loaʻaʻana o kekahi mau ano o deviations ma? Acaeoey, akā, i Loiloi i ka ulu ana o ka noʻonoʻo' oihana, a kuhikuhi i ka manaʻoʻike maomeka a me ka lapaʻau kāna hana.

I kaʻike, a'āno'ē? Acaeoey kikowaena manaʻoʻike, ka hoʻonaʻauao, a me ka lapaʻau aaiaoe noiʻi. Ua Ua ua mālama 'ia ka hoʻoholo' ana i ke kiʻekiʻe o ka hoʻopaneʻe 'ia ana i loko o ka ulu ana o ka mea naʻau a me ka hana,' imi naʻauao a me ka 'ōlelo. No hoi e loli ai i ka paa ana o ke kamaʻilio me ka nń ku maʻi 'ē aʻe pathological hoikeana, na makahiki, a me ka neurological ano o ka hoʻomanawanui.

Moebius maʻi pale iapaau ana

Pakele o keia insidious maʻi e like Moebius maʻi pale, lapaʻau hiki ke kōkuaʻoki lāʻau lapaʻau wale. He mea hiki ole i ka loa ke hoola i ka maʻi, i hou i ka mea hoʻonani deformities, kāna hana o ka moni 'ia hana a me nā kino pilikia i entails he kina, e hoomanawanui i haha aku i ka ikaika manaʻoʻike stress ma ke ola. Alleviate keia ano hiki wale surgically.

Me ke kōkua o ke eaʻoki kino ia mea hiki, e ho okumu i kaʻimi hoʻopunipuni lehalehu t, ka 'aoʻao, a laila, i ka hoʻomanawanui, e e hiki ke hookiekie i nā kihi o ka waha, e manao ana i ka pono o ka olioli. Na mea a pau'ē aʻe helehelena, a koe immobile a me ka expressionless. Aia nā hihia i ma hope o ia ke kaʻina hana, e loaa ole ai me nā hualoaʻa nā mea maʻi. No laila, ma mua o ka hana ua lawe mai piha ai i nā ka hoomanawanui ana o ka hopena, a hiki complications.

ʻike manaʻo o ka lawelawe pili

Kēia hana Heʻano huikau mai ka oaoieei-kēia lākiō, kona lōʻihi like 'ole mea kākaʻikahi emi o 8 hola. Ma hope o ka mea, ua rehabilitated nā mea maʻi i mālama nui mālama i nā lā. Mea pōmaikaʻi, ka hapanui kanaka me keia kina, e alakai i ka maʻamau ke ola, ka hana, hoʻoili i ka ohana, i na keiki.

Naʻe, i ka lehalehu t olelo no ka 'ōlelo a me ka nohona ka hoʻololiʻana ka loa nui. Ke hoomanawanui hiki ole loa hoʻomōhala. Aie i ka mea i kekahi kanaka nele o ka manawa e maliu oluolu mai la, a mai i ka haʻi squint, ia ua'āpono ike like intellectually hope kanaka. ʻOiai noʻonoʻo retardation wale 10% o nā mea maʻi.

Interlocutors loa paʻakikī e maopopo i ke ano o ka naoh kā lākou mau olelo i a me Kahalaopuna ia i keia manawa, i ke kanaka. A pau keia mau huelo maʻamau kamaʻilio, e hoʻomanawanui iki mai me Moebius maʻi pale kanaka'ē.

Moebius maʻi pale i na keiki

Young keiki kamaʻilioʻana i ka hoike okoa Emotions a me ka loa pinepine, no laila, i ke keiki a me Moebius maʻi pale, Ua koke maopopo. Mea, aole ia i pane koke ia mawaho stimuli,ʻaʻole e hea ana, eʻakaʻaka, a me ka hiki wawe i blink. Wale kani-ke vaguely maopopo mea ia e pēpē.

Mai ka hanau ana, he maka nō kēia mau keiki, he mea he maopopo asymmetry, hamama waha, ka maka mai i pani, e makaala mai no ka mea i ke keiki hiki, neʻe maila i kou poo wale. Kākaʻikahi ka nānāʻana aku i noʻonoʻo retardation, i ka hoʻomanawanui ua koi lomilomi mea ole wale ka maka akā, i ka 'ōlelo, ulu papa no ka articulation.

Nā symptoms i loko o ke keiki

Moebius maʻi pale - he hereditary pathology o ka hooilina ka autosomal recessive a emi Hoʻohaku. I ka wā o ka maʻi pale mea nō i loko o ka haukapila koʻu makuahine nana ole aku i mimics he keiki ka ku pono, ka mea, aole e hea aku, a mai e pani i kou mau maka i kekahi manawa i ka po. Mau keiki i loaʻa'āno'ē hewa:

• wa e kaawale aku ai kuʻi nukeliu o na manamanalima;
• deformation auricles;
• epicanthus.

ʻOiai ka ho'ākāka kumu o ka maʻi i ole i ua hookupaaia, kauka paipai ana ka hooponopono o ka ai 'a me narcotic waiwai i hāpai keiki maoli i ka pilikia o ka maʻi. Loa Moebius maʻi pale i loko o nā keiki hiki ole ke ola, akā, me ka makahiki i lilo softer hōʻike.

I KA WA OPIOPIO e hoʻoikaika kamailio ana o ka mākau

Mahalo i ka kūikawā aʻo, a hoʻonohonohoʻana i ka Denemaka Kumu, i kanaka me Moebius maʻi pale, hoʻoikaika 'ana i ka nohona Hawaiʻi. Ke AIM o ke aʻo mea io? Paralinguistic mea o ke kamailio ana o ka hoʻohana 'ana i kekahi mau intonations a me nā lima kolohe' ana.

Ka laulā o ke aʻo i ua ai pinepine ae la oia ma ia mea a me nā loina, i keʻano o, nā mea maʻi i hou haha aku ko mākou hopohopo, mai fuss a lilo hou nanea wale. E like me ka hopena o ka hoʻomanawanui iki mai ia lakou iho, he nui loa mai i haha hou.

Makeke-mea kākau o ka papahana mea i Ketlin Bogar, ka mea i diagnosed me Moebius maʻi pale. Kūkulu i ka 'oihana, a lilo iho la ia i ka holomua kauka i loko o kona hana, e ka papa kuhikuhiE Pahuhopu - e kūkulu i kekahi polokalamu mea e kōkua ai i ke hakuloli i loko o ke kaiāulu kanaka, no ka poʻe e loaa ana mai Moebius maʻi pale.